Do you even like your job?

by: Yoni Arya, Assistant Director of Programming

img_5049Camp Shutaf, part of Shutaf Inclusion Programs, offers 3 weeks of camp for 130 campers, teens and young adult participants from the greater Jerusalem area. More than 50% of Shutaf families pay significantly reduced tuition for the program which includes busing to and from camp. Shutaf believes that every family should have access to quality summer programs regardless of their financial situation, and without the family having to jump through hoops in order to  prove that they need financial aid for camp.

I have had the absolute pleasure of working for Shutaf for the last three years, now going on four, and everyday I find something new that I love about job.

The best part of my job at Shutaf is our focus on  answering difficult needs, especially during  summertime, Which can be the most difficult time of the year for children with special needs and their families. Choices for activities are limited, and most of them end up putting families into debt.

I am so proud that Shutaf is a reliable, professional and affordable answer for so many children and  families.

Let me tell you more with a story from a pre-camp home visit. I knocked on the door, Emotionally  prepared (or so I thought) for meeting a mom and her two boys. A ten year old boy, “Moshe”, answered. “Moshe” is super polite, and very sweet – you can tell he is very excited to see me. I sit down with his mother ‘Sara’, and his brother ‘David’, who is thirteen and a Half (a very important point to David), and their older sister who is an IDF soldier.

‘Sara’ begins by telling me that she will only be sending ‘David’ to camp as she is not familiar with Shutaf programs, and only feels comfortable sending her older son. From the way she is speaking, and by informally  assessing  their extremely modest home, I can tell that there is a lot more going on here then she is comfortable sharing with me.

I tell her about camp and the  different activities we offer, and watch as both  boys get excited. We discuss tuition, and I can also see the look on Sara’s face as she wonders how she is going to pay for two children to go to camp for two weeks. Next,my favorite part of the home visit, getting to know the kids. I find out that David  loves to sing and apparently is very good at it. He also loves soccer, carpentry and swimming. “Moshe” is an energetic boy who also loves sports, swimming and playing with friends. The family, thinking I wouldn’t take a problem child, told me that the children don’t really have behavioral issues.  This seemed a little odd to me and the sister had made a couple comments to the contrary. I filled in the children’s information and told Sara to be in touch with our Director, Marci Tirschwell to discuss price (which she brought up numerous times during this home visit).

I wanted a little more information on these children as I felt i didn’t get to see the full picture. After getting permission from the mother I got in contact with the school social worker who handed me over to David’s teacher.  My expectation of this call was that the teacher would tell me that the boys have some behavioral issues but it is a manageable situation. Boy was I wrong. The teacher proceeded to tell me that not only do the boys have some behavioural issues but the financial situation was worst than I thought. She told me that Sara is a very caring mother and tries her hardest but can only send a very plain sandwich for lunch and the school provides clothing for the children.  Sara can’t even pay the 3$ that goes towards the classroom fund. ON top of all this she had to have surgery on her leg so she is not able to work.

We decided, as is our policy, to contact the city social worker and double check the financial situation and see if the social services department would help this family pay for camp. I tried to contact the social worker several times but only once got a hold of a different social worker that told me she would ask  the families social worker to contact me. She hasn’t yet. Meanwhile our counselors get in contact with our families the week before camp in order to update them on relevant information for camp. I was told by one of the counselors that they called the “Cohen” family and were told that the children are not signed up for camp.

Finding this very odd I phoned Sara. Sara told me the children weren’t interested in camp anymore. To try and feel out what the issue was I asked if they would like to come to camp for a week. As Sara is discussing this with David I hear one of the most heartbreaking sentences come out of David’s mouth. “Mom if it’s too much money I don’t want to go”. What is happening in our country when a thirteen year old is willing to pass an amazing summer experience because his Mom can’t afford it?

I immediately told her that I would call her back in a few minutes. I called up Marci and explained the situation. Her immediate response “make it happen”. I am extremely proud to work in an organization that gave me the opportunity to allow this family to come to camp no questions asked. These two children are coming to camp. The mother payed the lowest tuition that I believe we ever offered and this family deserves that. Some of my fondest memories are of camp I don’t think any child should be deprived of that.

The Moments That Shape Us

There are moments that shape us as individuals and experiences that change our outlook on life. We’re not always aware of these changes in the moment, but as we reflect on the journey we have traveled, we can plan our path for the future.

Pat Deegan delivered a paper on the topic of “healing;” “…let the mainstream become a wide stream that has room for all of us and leaves no one stranded on the fringes.” I’m assuming Pat has never heard of Shutaf but she describes my Shutaf vision perfectly…

Chanukah Party, 2014It’s my first day of camp, there’s an enormous circle of campers and counselors that forms. They break out in song and dance, those participating are absolutely bursting with joy. There are a few individuals uninterested in participating. I try coaxing them into joining in, without any luck… At our after-camp-staff meeting we discuss what we as counselors should expect from the campers during “ma’agal” (circle time.)

With an adjusted outlook, I arrive on the second day of camp. As the circle of counselors and campers forms, I approach one of the few campers that isn’t interested in joining the larger group. I ask the camper if they would like to be a spectator to this “show”, we talk about being spectators at the theater, and choose to clap along, from the sidelines.

Participation is solely based on definition.
“…let the mainstream become a wide stream that has room for all of us and leaves no one stranded on the fringes.”

I’m on the bus with some of our teens from the teen leadership program. We talk about what we’ll need to do once we arrive at our destination, we start talking about recent bus line changes, and a well intending woman pipes up. She looks at me directly and wishes me a “kol hakavod,” (good job,) for spending time with them. “Them?”, I asked. I kindly explained that these are my friends, and we were just talking about the bus line changes, and inquire if she had heard. She hadn’t, so the “chevre”, my “chevre” filled her in.

“…let the mainstream become a wide stream that has room for all of us and leaves no one stranded on the fringes.”

It’s these moments and these experiences that have shaped me into who I am today. Shutaf has found a permanent home in my heart.

This post was written by Rina Shmuel. She has been on staff at Shutaf for three years, is studying to be an Ocupational Therapist, and recently became a presenter of the Shutaf “Inclusion Accelerators.”

 

First Day Impressions

IMG_20150731_182637Today is my first day of camp. I have the same feelings I did when I was a little kid going off to camp at the beginning of the summer. It’s only been about twenty minutes since I have been here, and I already feel overwhelmed. Not the run-for-the-hills kind of overwhelmed but the kind where you are very excited and nervous for what’s to come. One of the groups I spent time with was with was singing “Hakuna Matata,” and even though they were singing in Hebrew I found myself singing along (in my head in English). For me, being around and hearing something foreign and yet so familiar, like that well-known song, was very comforting. Watching all the kids energetically bounce around reminds me of when I went to camp. That made me so happy because once again I felt as though I could relate even though I could not understand anything that was being said.

What was even more comforting was just how friendly everyone was. Almost half of the staff and campers speak some level of English but even those that couldn’t, still made an effort to come over and make me feel welcomed. I am a very shy person when it comes to meeting people, as well as being in large groups but the friendly atmosphere helped me get through it.

The best part of my day was being in one these blow up plastic balls called “Zorbs”. At first it was just me and the other interns but after a few minutes all these campers came rushing in. They just started pushing me around, and then the staff joined in and it was really fun interacting with everyone in such a friendly manner.

Overall I had a really good day. I was internally freaking out most of the day trying to find my place and see where I fit in within the camp. I think after a few days I will start to feel more comfortable, and really get to enjoy Camp Shutaf for what it is – a really fun and inclusive environment. Within one day, I already feel like a changed person. and I can’t wait to see what the rest of these three weeks will hold!

Stephanie Reynolds is currently a summer intern at Shutaf. A Toronto native, she is in Israel on the ‘Real Life Israel,’ summer program.

“That Word”

Yoni and Gabi

Yoni and Gabi

I recently attended a birthday party for a friend. There were sixteen people at the party — I knew four of them — one’s a very close friend of mine. We were all sitting down to eat when somebody used the word retard.

Of course, I’d heard it, but seeing as the guests were mostly strangers to me, I decided to just move on, and let it go. I convinced myself that this person — this girl-who-used-the-word — didn’t know that she was misusing “that word,” that is, using it in a negative way. My close friend, knowing how I feel about people using “that word” (and I truly believe my friend didn’t mean any harm by it, and did not expect the girl-who-used-the-word to react as she did), jokingly said,

“Yoni, did you hear that?”

I tried to laugh it off instead of starting a debate on why we should or shouldn’t say “that word.”

Which did not happen.

Instead, the girl-who-used-the-word, turned around and asked me why “that word” bothered me?

In an attempt to avoid a major disagreement, I kindly explained that the word “retard” bothers me, and would she use another word. Like many people my age, (I’m 23), she thought that it would be amusing to keep using “that word” to get a rise out of me. I continued to explain that I personally don’t like getting into this kind of conversation with random people that I don’t know, let alone at a friend’s birthday party. Just as in previous situations I have been in, where I’ve heard people justifying the use of the word “retard,” the girl-who-used-the-word began sharing her thoughts;

“But I don’t mean anything bad by it,”

“It’s just a word,”

“It bothers you because you work in that field,”

The last one is what really hit home for me, and I was ready to burst but kept my cool. I wanted to say, “No, it bothers me because I have a sister who’s retarded,” just to see what her reaction would be, and what would be the next excuse she would have for using “that word.” Instead, I resisted, and (slightly more aggressively than before) explained that I have my own personal reasons for my reaction when people use “that word,” and could she please respect my decisions.

At this point, I realized I wasn’t going to change this girl-who-used-the-word’s mind, and that in the process had put myself into an agitated mood.

When I find myself in a situation like this, I like to use a technique that I practice when working with kids. The main point of the technique is to bring the conversation back to something to which both parties can relate — individually and together. I asked the girl-who-used-the-word to respect me as a person, and just use a different word. Just like when you ask someone on the bus not to put their feet on the seat. They might not think it’s a big deal, or see why it would bother someone, but usually out of respect for the other person they’ll take their feet down. People in any setting should be able to have safe conversations with each other — to learn and discuss topics that spur different opinions, and in this case, not put the other party guests in an uncomfortable situation.

I ended up leaving that party feeling very irritated. It wasn’t just because “that word” was used, but that I was put into a compromising position — either abandon my principles or come off as an opinionated person who went off on a rant, lecturing someone at a birthday party.

When I mention “that word,” I am not just talking about the word “retard,” or “retarded.” It’s about so much more than that.

Many of us, myself included (my mother can attest to that), take very little time to consider how our words can hurt someone — with or without our knowledge. Whether it be racially, anti-Semitic, sexist or just a mean word, we should all just take a second, and before we open our mouths, try to respect the people around us.  Like my mother always says, “think before you speak!”

Yoni is the Teen Leadership Coordinator for Shutaf. 

קייטנה לילדים בעלי צרכים מיוחדים מחפשת מקום קבע בירושלים

Author: Dana Pollak. This originally appeared in Walla News, on May 7th, 2015

שתי אימהות לילדים בעלי מוגבלויות הקימו מסגרת שתספק מענה לחופשות ולאחר הצהריים עבור
150 ילדים בעלי צרכים שונים. עכשיו, הן מחפשות מקום קבוע שיגרום להן להפסיק לנדוד, לטענתן לעירייה “לא אכפת”. עיריית ירושלים: “הבקשה תיבחן”1469827-18

מרים אברהם ובת’ שטיינברג, אימהות לילדים עם צרכים מיוחדים חיפשו מסגרת לילדיהם לתקופות חופש – חיפוש שלא העלה פתרונות. לכן, החליטו השתיים לפתוח בעצמן מסגרת עמותת “שותף”. כעת, אחרי שנים של פעילות, הן מחפשות מקום קבוע שיארח אותן בחופשת הקיץ. פניות לעיריית ירושלים, העיר שבה פועלת הקייטנה, נתקלו בדחיות חוזרות ונשנות לקבוע פגישות.

“התחלנו לפעול ב-2007 אבל עד היום לא מצאנו בית קבע”, אומרת שטיינברג, “את הפעילויות במהלך השבוע אנו עורכות בבית ימק”א בעיר ואת קייטנת פסח עשינו במוזיאון הטבע. היה מקסים שם וזה יכול להיות מקום מצוין גם לקיץ, אבל עכשיו מדברים על מכירת הקרקע לטובת בנייה. למה לא להשאיר משהו לטובת הילדים?”

“אנחנו שלושה חודשים לפני אוגוסט והמצב קשה. איש לא רוצה אותנו כשמדובר על תקופה של שלושה שבועות בלבד”, אומרת שטיינברג. “בפסח אנחנו הולכים לבתי הספר, אך בקיץ זו תקופה של שיפוצים לקראת השנה הבאה, אז זו לא אופציה. אנחנו מנסות לדפוק על כל דלת בתקווה למצוא מקום שיקבל אותנו ויהיה בגודל מתאים ונעים לילדים וגם מותאם לצרכיהם”.

את “שותף” הקימו שטיינברג ואברהם, עולות מארצות הברית, בעלת קייטרינג ומעצבת גרפית. תחילה, הייתה זו מסגרת קטנה שמטרתה לספק מענה לכמה משפחות שהכירו שחיפשו תעסוקת אחר הצהריים ובחופשות לילדים. “זה התחיל מעשרה ילדים שהעבירו שבועיים בכייף עם ארבעה מדריכים”, אומרת שטיינברג, “כשדיברנו עם ההורים הבנו שכולם הרגישו שלראשונה מצאו את מקומם. זה התחיל כמיזם פרטי לגמרי והפך למסגרת שהיא הרבה יותר ממה ששיערנו”.

כיום מציעה “שותף” תכניות שבועיות ופעילות בחופשות ליותר מ-150 ילדים ובני נוער עם צרכים מיוחדים בגילאי 21-6 בירושלים. הארגון יצר מודל משולב חדש שבו 75% ילדים עם צרכים מיוחדים והשאר הם ילדים “רגילים”. בין התכניות שמפעילה העמותה ניתן למצוא מועדוניות, קייטנות בפסח ובחופש הגדול, סדנאות שילוב לקהלים שונים ותכנית מד”צים- מנהיגים צעירים עם צרכים מיוחדים.

ייחודה של המסגרת הנו, כאמור, השילוב שבין ילדים עם צרכים שונים באותה מסגרת, שילוב מסוג שלא נראה באף מקום. הדבר מוביל לרשימת המתנה לקייטנה, רשימה שכוללת בעיקר ילדים רגילים. “אחרי הכל, גם הם מחפשים מסגרת ואנחנו נותנות משהו שלא קיים כאן. יש הורים שמבינים את היתרונות”, אומרת שטיינברג.

אברהם מוסיפה: “אנחנו עושות בפועל מה שהאקדמאים ואנשי המקצוע מדברים עליו – שילוב. זה לא רק לקחת ילדים בלי צרכים ועם צרכים אלא גם לערבב בין המוגבלויות. היום, מדיניות הממשלה מונעת שילוב שכזה וזה חבל. זה מוביל לבזבוז כספים כשעושים פעילות אחת לאוטיסטים, אחרת לבעלי פיגור ואחרת לבעלי תסמונת דאון. לכן, אין לנו טעם לגשת למכרזים של העיר או של המדינה כשכל מכרז מגביל אותנו לסוג מוגבלות ספציפי ואוסר עלינו לשלב ילדים עם מוגבלות אחרת או ילדים רגילים”.

“אם לא נמצא מקום גדול מספיק נאלץ לקצר את הקייטנה”

השתיים פנו לעיריית ירושלים במטרה לקבל סיוע באיתור מבנה – אך לא הצליחו למצוא אוזן קשבת. “שנים אני מנסה לשבת עם ראש העיר ולספר לו על העבודה שלנו אך זה לא יצא לפועל”, אומרת אברהם. “יש לנו פגישות עם אנשים בעירייה ממחלקת שיקום ומאגף הנוער, והם יודעים שאנחנו פועלות למען ילדים עם צרכים מיוחדים אך לא ממש אכפת להם. אנחנו מקבלות מהם עשרת אלפים שקלים, אבל למה זה מספיק? הם לא מבינים שאם משקיעים בילדים האלו עכשיו יהיה להם עתיד טוב, הם לא יהיו נטל על איש. אבל היום איש לא משקיע בהם”.

“אנשים בעירייה או גורמי מקצוע לא רואים את הפוטנציאל, לא מבינים שאנחנו הצעד הבא. אבל אנחנו ממשיכות לבדנו”, אומרת אברהם. “אם לא נמצא מקום גדול מספיק או כסף לשכירות למקומות שכרגע אין ביכולתנו לממן ולהתאים לצרכינו, נאלץ לקצר את הקייטנה. אבל זו לא הכוונה”, היא מוסיפה. “אנחנו כאן לספק מסגרת לילדים, מסגרת שתתאים לצרכיהם ותעניק להם את הכיף שכל ילד עושה בחופש הגדול”.

מעיריית ירושלים נמסר: “עיריית ירושלים מאשרת הקצבות על-פי קריטריונים מקצועיים, והעמותה קיבלה הקצבה בסכום של עשרת אלפים שקלים. לעירייה הגיעה רק לאחרונה בקשה מעומתת ‘שיתוף’ להקצאת מקום לפעילותם, והבקשה תיבחן בהתאם לקריטריונים ולנוהל ההקצאות”.

לפניות לכתבת דנה ווילר פולק: danawp@walla.co.il

My Perfect Internship

11053271_10152737475253441_5953663643612746229_oAs a recent college graduate, it’s a pretty standard thing to do an internship. A lot of people my age do internships to get experiences in various different fields that they are interested in possibly working in one day. It’s really not a rare thing.

What is rare, however, is to find the perfect internship. And let me tell you- I can say, without hesitation, that my internship experience with Shutaf could not have been more perfect. From the work I was doing to the people I was working with, everything was simply awesome.

Here are my top 5 reasons why Shutaf was such a perfect internship:

1) The staff at Shutaf is top-notch. I had the experience of getting to work with some really inspiring people, who all have such a passion and dedication to the work that they do day in and day out. I remember coming to the first staff meeting on a Tuesday morning and being a bit nervous. How do I suddenly incorporate myself into this organization that is already running so smoothly without me? My fears were relieved from the very minute the meeting started, as everyone on the staff was so welcoming and eager to hear my opinions on various topics.

2) My big project at Shutaf was so much fun and so rewarding! I had the chance to coordinate, for the first time, a team of runners to run in the Jerusalem Marathon in support of a more inclusive Jerusalem. It was a big task, but I was excited for the challenge! I’ve often heard friends complain that at their internships they weren’t given substantial, long-term projects. This certainly wasn’t the case for me!

3) Flexibility. As someone traveling in a new country, participating on a Masa program, and dealing with lots of constant schedule changes, flexibility was crucial. And at Shutaf, I found from the start that the staff was, thankfully, so flexible. I worked most directly with Elizabeth, the Director of Outreach and Education, and she always available by phone, email, text message, you name it! If I had a work conflict, she helped me figure it out. If I needed to come to the office a bit late she happily said “no problem” with a smile.

4) The kids and teens and Shutaf are simply awesome. I’m really going to miss seeing their faces every Thursday (and sometimes Tuesday) afternoon. Even with my limited Hebrew, they were eager to engage in conversation, learn more about me, tell me about their weekend adventures. They’re really just a great group of kids, each with such unique personalities. So full of life, so enthusiastic and willing to try new things, even things that may be scary and difficult at first.

5) Shutaf, as an organization, has the power to change the world, and I really do mean that. As I’ve said so many times to so many different people, Shutaf is a model of inclusion for the entire world. Read about Shutaf, visit the program, hear from volunteers, listen to personal stories and you’ll be amazed at just how flawlessly Shutaf works. I’ve learned so much from Shutaf and now’s the time for me to pass it on.

Written by, Rebecca Cushman, who interned with Shutaf from October, 2014-March, 2015. She was originally a participant in the “Real Life Israel,” Masa affiliated program.

Shutaf: The Best Place To Be

In one room, four pre-teen girls closely followed the complicated sequence of Zumba steps their teacher, Lisa, was doing in time to the music.  In an adjacent room, a small group of children, aged 6-13, sat in a circle petting a variety of animals brought in by Aryeh, a staffer from Jerusalem’s Nature Museum who has worked at Shutaf for many years.  One boy finally worked up the courage to pet a rooster (more than I could do); another stoked the soft fur of a white a rabbit; and others carefully held guinea pigs, and other tame animals.  Downstairs in the gym, under the supervision of a gym teacher, two teams were engaged in a spirited obstacle course-type relay race involving running, balancing on a beam, and aiming a basketball into a net.  A preteen unable to run due to a back injury, participated by serving as the timekeeper with her Smartphone.  But, winning or losing didn’t really seem to matter; it was all about being in the best place to be for having fun, socializing, cooperating, and getting exercise.

Marci, the Program Director of Shutaf’s informal, inclusive education program had been giving me a tour of the inclusive afterschool activities held two afternoons a week at the Jerusalem YMCA.  It was important for me to see and appreciate first-hand one of the Shutaf programs in action.

Arranged by Skilled Volunteers for Israel, I was a volunteer from the U.S. for a month. Thus far, I had been spending my time working at the Shutaf office alongside Beth and Miriam, the organization’s founders; Marci and Yoni, a staff professional), with Elizabeth, the Director of Outreach and Education, and Rebecca, another volunteer from the U.S.

Meeting four days a week at the office, we collaborated on key issues: program planning, grant writing, and program assessment.  We clarified ideas about each program’s goals and objectives (for the after school program at the YMCA), camp programs (the week before Passover and for three weeks in the summer), and the different units specially designed for the teens.  For example, we documented what had occurred during a teen unit on going to a restaurant, and another on sex education.  We listed the ways in which these units resulted in a positive impact on the teen participants.  For the restaurant unit, we discussed how the teens succeeded in learning appropriate restaurant behavior, how to order, and what it meant to converse over a meal.  We worked on formulating and refining plans to share with current and future donors, to ensure that they would understand and financially support Shutaf’s many, valuable programs.

I have come to appreciate that no matter where you may be—at the YMCA, at camp, taking a field trip with the teens, or working at the office with extraordinary colleagues—Shutaf is the best place to be, not only for the program participants, but also for a volunteer.

Thank you, Shutaf!

Judith Zorfass, February 24, 2015

P.S. And the extra bonus for me was that it was the best place to be for the month of February—who cared about a Jerusalem snowstorm (we had much, much worse back home in Boston).

judyz (1)Dr. Judith Zorfass is currently a senior advisor to a project funded by the U.S. Department of Education, Office of Special Education Programs and a supervisor of special education student teachers for Lesley University.  From 1986-2014, she directed over 25 federally-funded projects at the nationally-recognized organization, Education Development Center. Her work focused specifically on literacy development, special education, and technology implementation. She has conducted research studies, developed curriculum, created software, designed and conducted online courses and webinars, designed websites, and carried out professional development. In addition to authoring the book, Helping Middle School Students Become Active Researchers, she has written book chapters and journal articles. She frequently presented at national conferences.  Dr. Zorfass received her doctorate in reading and language development from the Graduate School of Education at Harvard University.  She has been delighted to be visiting Israel from Boston for the month of February, volunteering at Shutaf in Jerusalem.

 

Valuing Differences. Guest Blog by: Jenn Smith

Jenn interned at Shutaf during 2013-2014 academic year.  Originally from LA, she lived in Jerusalem while studying in Hebrew University’s Non-Profit Management and Leadership MA program.  Thank you, Jenn!

Jennifer SmithPrior to my first visit to Shutaf’s afterschool program I was warned that most of the kids would speak little to no English, however with two months of ulpan under my belt, I was confident that I would be able to communicate with at least some of them. Boy was I wrong! When I arrived at the program, the kids were all very warm and welcoming, but once they started talking, I seemed to have forgotten all of the Hebrew that I had learned! A young girl immediately approached me to investigate who I was and what I was doing at Shutaf. A staff member not only had to translate for me, but also respond on my behalf. I was not as fortunate other times that afternoon and often found myself frantically searching for help when a child attempted to communicate with me. I was dependent entirely on the English-speaking staff. Not being able to communicate with the kids made me feel useless and completely isolated from the very people I was there to interact with.

As the afternoon progressed, many of the kids seemed to pick up on my limitation or special need, if you will. One boy took my hand and brought me over to where lunch was being served and merely pointed to the items that he wanted and required my help getting. Another girl, who insisted that we work on her art piece together, simply communicated by passing me a crayon and pointing at her drawing. I knew I correctly interpreted her actions when a huge grin spread across her face after I began adding a little jewelry to the ladies in her drawing! She clearly had not yet learned that every woman is in need of a little bling and I was happy to share such an important life lesson with her! After our artwork was complete, another group of kids gestured for me to join them on the floor for a card game that I was unfamiliar with. They demonstrated first how to play and then handed me the cards so that I could have a turn. They were patient when I didn’t catch on to some of the rules immediately and persistent in trying to find alternative ways to explain something when I didn’t understand their hand mimes the first time. Similar instances occurred throughout the remainder of the afternoon and, by the end of the program, I was baffled as to where the time went!

I had never thought of myself as being a person who has a disability, but reflecting back on my first visit to Shutaf, I now see that I was. Yes, it was only temporary and, in the realm of disabilities, doesn’t even begin to compare, but it did give me a quick glimpse into what many of these kids experience on a daily basis and may continue to throughout their lives. The initial feelings of isolation, exclusion, frustration, and purposelessness that endured when I arrived at Shutaf are typical for a person who has a disability. Although adjusting to this new environment and impairment of mine was difficult and uncomfortable at first, having the kids at Shutaf accept and include me despite my differences, made a huge impact and had me leaving with a sense of purpose. This outcome, I believe, can be attributed to the amazing, inclusive environment that the Shutaf staff has cultivated.

Above all else, Shutaf has taught me to value people’s differences by understanding that everyone has something worth contributing. I was lucky enough to be in an environment with kids who are thoughtful, tolerant, kind, and patient, and also embrace this very notion. Unfortunately, this is not always the case. It is important to remember that although you may not know now what it feels like to be a person who has a disability, likely, at some point in your life, you will (World Health Organization). Keep this in mind before you decide to brush off someone who might be a little bit different from you, or even before you choose to park on the sidewalk, making it virtually impossible for someone in a wheelchair to get somewhere they need to be, instead of spending the extra ten minutes it takes to find a parking spot, or before you opt to not make your business, classroom, program, or whatever else, accessible for everyone because it requires a little extra work on your end or might cost a bit more.

A huge thank you to all of the Shutaf staff and Shutaf participants for the invaluable lessons you have taught me over the last year! I will be sure to share those lessons and I hope you and everyone reading will do the same!

Sleepless in Jerusalem.

By: Shutaf Co-Founder, Miriam Avraham

vin in poolParents of children, teens and adults with disabilities see the world through a very different prism – a unique prism of worry. We worry about different and more things than the rest of you do. The things that are obvious, attainable and easy for typical children can be huge obstacles for a child or young adult with special needs. Other 18 year olds are moving on to a new stage in life – completing a gap year, going into the army or national service. At our house we’re trying to get Vinnie to serve herself lunch.

This latest surreal situation in Israel is scary, especially for Israelis in the south. I can’t imagine. While Jerusalem has been relatively quiet, Vinnie was outdoors during one siren and the loud noise freaked her out. She’s been uptight since then, has had trouble falling asleep and bad dreams.

I worry if I’ll be able to wake Vinnie from a deep sleep so that she’ll cooperate and run down the 3 flights to the bomb shelter in our building. I worry if she’ll act fast enough and figure out what to do if a siren goes off while she’s out walking the dog. I accompanied her one day but she wants to do it herself. (Something we worked hard on to help her gain confidence and be able to do this on her own)

Vinnie’s not going to her school’s summer program because they don’t have any bomb shelters or safe rooms. She’s bored at home, missing her routine. Luckily my husband and I work at home and we are coordinating our time so that we don’t leave her alone in case a siren goes off.

We’re always treading a fine line between protecting her and helping her learn new skills and gain self confidence so she can enjoy being a young adult and become more independent. Yet, in crazy times like these it’s really hard to keep sight of that line. We’re trying to continue a daily routine yet keeping her safe might mean losing a lot of hard earned achievements.

So who can sleep?

#IsraelUnderFire How are children with disabilities coping?

Dear Shutaf Friends,

For children with disabilities and their families, the current barrage of sounds and images are deeply disturbing, from rioting in the city to the frightening blast of the sire. For panicked parents, herding a child with sensory, developmental and/or physical challenges into a public bomb shelter is a nightmare.

Miriam Avraham, Shutaf co-founder and mother to Vinnie, was grateful the siren blared before he daughter’s bedtime, “Vinnie is very sensitive to sounds and can quickly become emotionaly overwrought. I can’t just get her to run down the stairs to the bomb shelter in the middle of the night.”

During this tense time, we need to live our lives as normally as possible. At Shutaf, the means preparing for 3 wonderful and inclusive weeks at our August camp, while solving new challenges caused by the current situation.

  • A more secure venue for camp.  Today, we signed on a newly-renovated space with a safe room on every floor.
  • Increased camper demand.  We’ve added an additional group, making room for more campers.  We’ve maxed out registration and have a waiting list.
  • Keeping teens in camp.  Instead of riding public buses to local activities, teens will take private, Shutaf-arranged buses and do more in-camp activities.

With your help, we can ensure every child’s safety, security and success at Shutaf.           With your help, we can raise an additional $25,000 in scholarship funding for August.     With your help, we can ease parental stress, offering respite to more families.

With our deepest thanks,

Beth Steinberg and Miriam Avraham, Founders, Shutaf

Rena Magun, Board Chair, Shutaf

P.S. Show your support for Israel.  Help send a child to camp.