Sleepless in Jerusalem.

By: Shutaf Co-Founder, Miriam Avraham

vin in poolParents of children, teens and adults with disabilities see the world through a very different prism – a unique prism of worry. We worry about different and more things than the rest of you do. The things that are obvious, attainable and easy for typical children can be huge obstacles for a child or young adult with special needs. Other 18 year olds are moving on to a new stage in life – completing a gap year, going into the army or national service. At our house we’re trying to get Vinnie to serve herself lunch.

This latest surreal situation in Israel is scary, especially for Israelis in the south. I can’t imagine. While Jerusalem has been relatively quiet, Vinnie was outdoors during one siren and the loud noise freaked her out. She’s been uptight since then, has had trouble falling asleep and bad dreams.

I worry if I’ll be able to wake Vinnie from a deep sleep so that she’ll cooperate and run down the 3 flights to the bomb shelter in our building. I worry if she’ll act fast enough and figure out what to do if a siren goes off while she’s out walking the dog. I accompanied her one day but she wants to do it herself. (Something we worked hard on to help her gain confidence and be able to do this on her own)

Vinnie’s not going to her school’s summer program because they don’t have any bomb shelters or safe rooms. She’s bored at home, missing her routine. Luckily my husband and I work at home and we are coordinating our time so that we don’t leave her alone in case a siren goes off.

We’re always treading a fine line between protecting her and helping her learn new skills and gain self confidence so she can enjoy being a young adult and become more independent. Yet, in crazy times like these it’s really hard to keep sight of that line. We’re trying to continue a daily routine yet keeping her safe might mean losing a lot of hard earned achievements.

So who can sleep?

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#IsraelUnderFire How are children with disabilities coping?

Dear Shutaf Friends,

For children with disabilities and their families, the current barrage of sounds and images are deeply disturbing, from rioting in the city to the frightening blast of the sire. For panicked parents, herding a child with sensory, developmental and/or physical challenges into a public bomb shelter is a nightmare.

Miriam Avraham, Shutaf co-founder and mother to Vinnie, was grateful the siren blared before he daughter’s bedtime, “Vinnie is very sensitive to sounds and can quickly become emotionaly overwrought. I can’t just get her to run down the stairs to the bomb shelter in the middle of the night.”

During this tense time, we need to live our lives as normally as possible. At Shutaf, the means preparing for 3 wonderful and inclusive weeks at our August camp, while solving new challenges caused by the current situation.

  • A more secure venue for camp.  Today, we signed on a newly-renovated space with a safe room on every floor.
  • Increased camper demand.  We’ve added an additional group, making room for more campers.  We’ve maxed out registration and have a waiting list.
  • Keeping teens in camp.  Instead of riding public buses to local activities, teens will take private, Shutaf-arranged buses and do more in-camp activities.

With your help, we can ensure every child’s safety, security and success at Shutaf.           With your help, we can raise an additional $25,000 in scholarship funding for August.     With your help, we can ease parental stress, offering respite to more families.

With our deepest thanks,

Beth Steinberg and Miriam Avraham, Founders, Shutaf

Rena Magun, Board Chair, Shutaf

P.S. Show your support for Israel.  Help send a child to camp.